My name is Tricia and I am a 25 yr old graduate student studying Christian Counseling. I have a rare metabolic disorder known as PKU (Phenylketonuria) that the only current treatment is a severely strict low protein diet. Earlier this year I was given the opportunity to participate in a drug trial for a new treatment (WHAT?!). I officially began the trial on July 30, 2015. While I am no way a typical blogger, I have decided to keep a blog to keep my friends, family and the PKU community in the loop. There is more about me, PKU and the trial in my first blog post! Thanks for reading!
Hey I’ve got a question if you are able to have a normal diet do you still have to drink formula
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That’s a good question! They don’t have all the details worked out, but I imagine it depends on how it works for each person. So my guess is that if you can handle a normal diet then the formula is not needed as long as you are taking the injection daily and taking the tyrosine supplements (that is also something I have to do for the study). It’s not a definite answer, but that’s what I understand so far!
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